23.10.12
Dear Friends and Readers,
Sorry about his edition coming hard on the heels of number 6. If I don’t watch out it may really become a weekly. About as weekly as the Daily Twit is daily.
For those who I’ve not seen recently, the news is that my last blood test gave a PSA reading that was “undetectable”. The actual reading was 0.01. The radio therapist says this gives a 50% chance that the cancer is gone or it is still there in microscopic form. I now need to decide between 7 weeks of radio therapy to kill off remaining cells or the option of monthly monitoring of the PSA level with radio therapy if it starts to rise. The latter sounds a lot better as the side effect of the RT are numerous and some of them rather worrying (including the RT causing further cancers). It also comes with a hefty dose of hormones. However I suppose I’d feel a bit silly if the cancer returns and I hadn’t taken the RT treatment. It’s interesting to note that if it does move to another part of the body it is still prostate cancer. Particularly odd as I no longer have one.
Decisions, decisions! Maybe I should ask a policeman?
For patients who are unsure there is an after-surgery medical trial called RADICALS that randomly puts you in one group or the other. The purpose of the trial is to ascertain which of the 2 options gives better survival rates. Given that prostate cancer is very popular these days there is still a lot that is unknown. I am an ideal subject for this scheme as I am considered a ‘young’ sufferer.
Amongst other trials, I am also signed up for one that explores a genetic link for this type of cancer. On the form I had to give permission for them to use my removed prostate. There is no payment for this desirable item and it has to be classed as a “gift”. Who can imagine a more delightful present?
I also attended a physiotherapy session in the 52 Club on Gower St. It turned out that I was about the youngest person there and one of the few that could walk without assistance. I don’t think the physio helped a great deal but it was good for self-esteem.
Anyway, there may not be a great deal more to say for some time about this whole unusual saga so Cancer Weekly will revert to being a very occasional publication. It looks like the most exciting bit is behind me (at least I hope so) and it’s now a matter of waiting. Even if I choose radio therapy it won’t start until next year.
Thanks for reading and for all your help, support and odd ideas.
Luv Magnus
Cancer Weekly No.7 now available at all irregular newsagents.
Coming soon on the website – Watersports with Captain Magno.
Click on Doggy bag to see video